CBD strives to be as patient centered as possible, allowing patient needs to shape the support we offer.

We have offered assistance in planning patient advocacy meetings, writing for funding for quality-of-life enhancements (wheel-chairs; walkers and other mobility-measures, home adaptations and even to fund personal projects for Rare patients. CBD has worked as intermediaries for patients in low-income countries in order to gain traction for fundraising or for awareness.

In this community, CBD has continued to find that MOST advocates are directly related to or even are a patient of a Rare Disease. The personal passion these family members and patients have to make a difference is contagious and when CBD can, it wants to support these missions.

The passion for change-making in the Rare World is fierce and contagious. Many advocates for Rare Disease are either a patient themselves, or a patient’s ‘loved one’, creating such a cause for progress. It is CBD’s passion to support these advocates succeed.